Meet Gabriel - An Awesome Doose Warrior

Gabriel

Gabriel

Age of onset: 2

My sweet son Gabriel started off his life like any other 2-year-old boy playing with his older sister, going to daycare and having a happy life. At the end of 2 yrs old, he developed Doose Syndrome which causes him to have many seizures every single day of his life. He has NOT been seizure-free since the first day we’ve spotted them. At least 3 times a week he has drop seizures which are the scariest of them all. His speech and ability to make decisions has went downhill since the onset of the seizures. He is such a sweet and loving boy and I pray every single day that we will just get one day to be seizure-free. Gabriel went from taking Depakote to Keppra then Onfi and now we are still on Onfi and weaning to take Epidiolex.

 

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