Finding Support

Doose Syndrome Families

The constant care, stress, and worry associated with a child living with Doose syndrome can severely impact the person and the family’s quality of life including siblings. Parents need to develop a network of support beyond just their medical teams. One place to begin is in our Facebook group for parents, caregivers, and extended families of children with the condition. Visit to request access to the group.

Also, you can visit the section of our site called Finding support which you can find here.  It will address issues of: