The constant care, stress, and worry associated with a child living with Doose syndrome can severely impact the person and the family’s quality of life including siblings. Parents need to develop a network of support beyond just their medical teams. One place to begin is in our Facebook group for parents, caregivers, and extended families of children with the condition. Visit https://www.facebook.com/groups/DooseSyndrome/ to request access to the group.
Also, you can visit the section of our site called Finding support which you can find here. It will address issues of:
- Social Support (Facebook Group)
- Financial Support (Patient Assistance)
- Educational and Behavioral Support (Neuropsychology, Developmental and Behavioral Medicine)
- Mental Health Support (for the entire family)