Our Children

Small head nods, almost imperceptible at 2, became more significant over months. By 2.5, was having head drops. At most, sets of 3, 6-7 times

Sal’s journey began at 10 months of age. We were seeing him get “startled” a lot. We later learned they were Myoclonic seizures. Many months

Adonijah (Ado), the youngest in the Family, was born a healthy boy here in Kampala-Uganda at St. Francis Hospital – Nsambya on September 20, 2018.

My daughter Grace has always been very healthy when suddenly she had hat first tonic-clonic seizure on the 4th of September 2016. After that, she

My sweet son Gabriel started off his life like any other 2-year-old boy playing with his older sister, going to daycare and having a happy

Oscar had his first seizure a few weeks after his 3rd birthday, a week later another, doctors said they didn’t think he was having seizures

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